She thought she was just fever, but now Tia -leigh can’t see without glue, tape or even botox injected into her eyes – her rare state has let her live with the fear of losing her eyesight
For the 21-year-old Tia-Leigh Streamer from Dorset, her life changed all night in 2023 when she woke up with a lash. At that time, he put it on seasonal allergies – nothing important. But what began as a little discomfort would later let her physically find her eyelids open to pass by day.
Neurological disorder causes abnormal contractions to the eyelid muscles, causing uncontrolled flash, twist and convulsions. This happens when the part of the brain responsible for moving the eyelids stops working properly – but in most cases, doctors do not know why.
“I have the same level of vision as a person with visual impairments, but I have nothing wrong with my eyesight,” said Tia-Leigh, who was an aspiring trainee.
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There is no cure right now, but it has tried a treatment that many would not expect – Botox injections directly on its eyelids. “I have done them every eight to 10 weeks right now.
Doctors at the Royal Bournemouth Hospital started it for injections in March last year and has since been based on them – just to open her eyes. When Botox is worn, she has left naturally holding her eyelids open to see. And because this is not viable, it is often forced to stick or open them – leaving it with bruises from the movie.
“When I get stuck or open I can’t blink at all. The doctors said that the more I do for then I am more likely to really destroy my eyes and then lose my eyes, something I don’t want to do,” he said. “It’s difficult. Because either I have no spectacle or a handful hand.”
Even with Botox, her eyes can be closed from things as simple as sunlight, headlights or computer screen.
“I know it’s neurological, but they don’t know what is causing, which makes it worse for me,” he said. “If they could say it was caused by it, I think it would make me feel a little less in the dark.”
“To tell you that I have this for the rest of my life and I don’t know why it’s a difficult thing to deal with.”
Before diagnosed, Tia -leigh was trained to become an accountant – a career based on its existence behind the computer screen. She was told that it would no longer be possible.
“It was awesome to be honest. I had everything planned,” he said. “I was trained to do this and saved to move out and get married and have children and everything was removed from me.”
Half of the treatment, antidepressants had been prescribed to deal with emotional tolls. “I tried the treatment. I tried hypnotherapy, but nothing helped,” he said. “The more it goes on. I get used to it, but there are still days where I really get down for it, especially as botox is over.”
She is also afraid that her body can get used to injections and eventually could stop working. While the situation has affected every part of her life, her biggest struggle is the loss of independence. Tia-Leigh now avoids coming out on his own, if suddenly he can’t see.
“I’m basically in most of the time,” he said. “It stops me doing things I like. I used to do a lot of grids, but you need two hands to do this – so I can’t do it at home.” Even the construction of food is difficult. With only one hand free, she is often based on her family to prepare meals – and sometimes she has to ask them to cut it.
“It’s like going back to being a kid again because I can’t use a knife and fork and see what I’m doing,” he said.
Tia -leigh married last December – but even her wedding day had to be scheduled for Botox injections. “I wanted to make sure I had Botox two weeks before my wedding because it takes my eyes about a week to open after I had done it,” he explained. “It was a frightening day and I think it’s one of the reasons that prompted us to get married so fast.”
While the marriage went smoothly, it has a big fear that cannot yet move – having a baby in the future.
“The night is the worst. They just won’t open at all,” he said. “I have nightmares for a baby beside me and crying and I can’t wake up my husband and I can’t get to help because of my eyes.” He added that she knows that the blind parents exist and thrive – but the fear will remain until one day Mom itself becomes.
At the moment, her therapeutic plan is a test and wrong. Her doctor adjusts the amount of botox to her top and lower eyelids, hoping for long -term results. “It can change slightly where it puts injections and will watch it and see how long it lasts,” he said. “It’s about to hope that he will be able to find a better balance so that we can get some greater results than Botox.”
Tia-Leigh shares her journey online and now has more than 3,000 fans in Tiktok.
